Thursday, June 18, 2015

Almost 18 months - pic update

Short update, mostly pictures.

I saw a commercial the other day for a clinical trial on eczema. Most of us in TSW know about the biologic Dupilumab but there is another trial going on for Tralokinumab. I don't know exactly how they work but I think generally speaking they block the "inflammation" protein that causes eczema. I sent in my information because I thought why not get some info but the office is over an hour away and honestly Im too scared to participate in a study where the long term side effects are unknown. Especially since I want to get pregnant right after this is over. Plus Dr Rapaport thinks I'm halfway done with full functionality to return next year. So I dont want to trade in one problem for another. I've made it this far, I can do this.

Pics of the last month in rough chronological order:

Cheeks oozing after itch fest

So dry when flaring

Calm after a flare

Knees are the worst. I have to hop down the stairs like a one legged pirate.
 These last ones are from yesterday

Hands are SO dry and hurt most during and after baths

So that's what 1.5 years of TSW is looking like for me!


  1. Hi Karina,
    Your courage is simply amazing and I really hope healing is not far for you now because you deserve it so much. I stopped using steroids two years ago and when I'm feeling down your blog helps me stay on track. So thank you for sharing your journey to healing. Sending you all the best from France.

  2. Wow, that is really nice to hear. Thank you so much for the kind words. Here's to hoping that both of us are healed soon!!