Thursday, July 16, 2015
It's been about 18.5 months since I quit using topical steroids and for once I can report that I'm doing well! My last monthly flare (I have predictable and unpredictable flares - the predictable ones come monthly with my period) was not as bad as prior ones. I actually left the house to run errands mid-flare which I have NEVER done. Even my last valium taper was not as bad, though when I mentioned that to hubby he thought I was joking. It didn't feel as bad! My sleep is still awful. I generally sleep about 50% of the amount of time I lay in bed trying to. So if I lay there from midnight to 10am, I probably slept 5 hours. I wake up after an hour of sleep, then I'm awake for an hour or more, then back to sleep for another hour or two if I'm lucky and then finally when the sun comes up I get my best sleep of about 2-3 hours. Never more than 3 hours. It is SO ANNOYING. And you would think id be tired enough to nap but most of the time I can't fall asleep when trying to nap either. I'm bathing twice a day and trying to get an hour of sun a day but have been averaging 3 days a week. Even so, my skin feels okay! Honestly it's probably the best it's been since I started this crazy thing. I really hope this trend continues.